Yet, O LORD, you are our Father. We are the clay, you are the potter; we are all the work of your hand.
This has been the verse that I have held on to since the day I found out that my baby was “not perfect” yes I said it, I have moved on from that first thought but WOW! when I was looking at this little TV screen and I saw this Huge bump on my tiny baby I was shocked, horrified, and I could not believe that this image of what my little girl was going to be was just snatched away before she even got here. Did I stop loving this little person who I was growing, No… I was Changing each and every day while she was in me. The Lord was teaching me to be a Mommy soldier, going to battle with each and every appointment that we need to with doctors poking at my body with wonder at what was wrong with this little human. With them making guesses at who she would be when she was born and what to expect. A wall was growing like a bunker around me I was wanting to not only save her from herself, but I did not want anyone to see that God gave her to the wrong Mommy.
The day came for her to enter this world, I remember it like yesterday… We were in this room that had a view of the whole city of Portland it was dark so the lights twinkled like diamonds. We had so many doctors in the room everyone wanted to see, as I was giving birth the doctor said you have to push she has to come… My last thought as she was coming into this world was she is safer where she is I don’t want to push, and at that moment was the first time I gave her over to the Lord.
Everything was different with her, she was a piece of heaven from the very start. I was different too, I let people hold her, I let a nurse take her and walk her around the halls the first night of her life. I was hiding my heart. The bunker was getting bigger. And then something changed in me with her, they needed to poke my baby they had to put her to sleep for a test, she looked dead my heart stopped… This is real, they put her in the NICU, I could not feed her, the nurses had to. They did her first surgery at one day old… I had a pastor ask me what do we do if she dies, I will never forget this… I said then we had one day with an Angel.
I learned to be her advocated, I learned to fight for her life. I was blessed to build the best medical team possible. I was learning to be the Mommy that God was expecting me to be. But I also learned to hide. I need everyone to know that everything was going to be fine. That God would take care of her, because he I new that he would. But I was cracking up on the inside. Still today I look back and say no way did we go through that. It was like the Lord was protecting me from what was realing going on. I think that maybe it was a blessing and a curse, my heart is healing from years of pain because right now we are on a mountain top. We have been in the Valley for seven years, it is amazing, to look at our past and I am awe. But when I do I get so chocked up, I am praising the Lord for the perseverance that he has given Josh and I that we have made it to the mountain to together. That we love each other so passionately and that we have held strong to each other and God through this time.
Our mountain top, You all know the middle of this story she had cancer she has had 50 surgeries, we have been in the Valley for seven years. But this last year we have spent on the Mountain top. This last year has been the best of her life, we are so blessed. It is amazing to watch her play, ride a bike, swim, she is Brilliant I am not just being a Mommy, I was just told this at a meeting held by the school. She has over come every obstacle that has been placed in fount of her with grace and Joy. She is reading and writing, and is amazing at math. She is the most talent artist. I never could of dreamed this image of a “perfect baby” God molded and created something beyond my wildest dreams. He has always has a perfect plan for her.
So I am going to praise him for his perfect plans. I am going to try to look at things from a different angle, from the people that he place in my life to the way he has made each and everyone of us. To the little things like being off schedule, five minutes can change your life. Trust me….